These Crashy Days...

So a good friend sent me a private FB message saying if I didn't want to be so strong all of the time she was here to listen to me winge and whine anytime I needed it.  Said friend is definitely one of the smartest, safest people with whom I would rant and rave, but I try to save it for these blog posts.  I try not to drown people in sorrow on "Best Face forward-Book", that is the place of sunshine and light and family pics and "see how well I'm doing?? I'm fine, no Fine, no FINE I tell you, godddamit!

The truth is I dread every round of chemo.  I had a major meltdown last time when I thought I was on my "getting better" day (according to the demanding schedule inside of my head, based on the last round) and I tried to take the small dog for a five mintue shuffle down the road and found myself heart pounding, lathery sweat, shaking trying to get home.  Plus the stupid dog refused to poop, which probably meant a lovely surprise on the kitchen floor later, but that's a whine for another time...

I can sum up my chemo week (I get my infusion on a Tuesday and usuallys start crashing on Thursday) like the opening theme of that classic, feel good show,  Happy Days, if you're old enough to remember Fonz and the Gang sing along in your head:

Tuesday, Wednesday - HAPPY DAYS  (I have a buttload of steroids keeping me artificially afloat)

Thursday, Friday -CRASHY DAYS  (steroids have worn off... the drugged "Bill Cosby's date" feeling) sets in...

Saturday, Sunday - BONE PAINY DAYS (from my immune booster shot, ususally settles in a throbbing headache and lower back pain, with bonus shots down my front femurs, fun!)

Monday Comes, METAL MOUTH AND GUMS, and everything tastes like burnt sooo-ooot!

Sing it!  These days go ooon-ooon-oon... these crashy days!!!  For about 10-12 days they go ooon-ooon-oon, (along with gastrointestinal distress and various emotional breakdowns!)

Sing it!...   Ah, suck it!

On Camping and other "C" words.....

Well, well well... who knew it could happen?  A family vacation during which I do not cry once?  It only took 10 years for us to be able to leave with the boys out of the house and not wish for the sweet realease of.. oh, wait, maybe I shouldn't joke about that anymore, given present circumstances.

Ahem,

So i guess I'll put this experience into the gratitude category which has gotten a lot longer as of late.  I have to work carefully to control the behavior of my mind.  It is so easy to get scared and say "what if.. and worry about whether the dreaded beastie will decide to spread, now or down the road.  Granted, it has a 95% chance of never making another uninvited appearance, but that 5% will niggle at you, if you let it.  It is an unpredictable beast and when my mind wants to dwell on this I must control it's behavior, like that of a toddler.  Re-direct, distract, give it ice-cream.

Counting my blessings is a great way to change the direction of my meandering brain.  This experience has given me as much as it has taken away, I am awestruck by the kindness and thoughtfulness of my friends, and people who hardly know me, but still go out of their way with a kind message or gesture or a gift.  I have learned that my family is not a bunch of people who wait until all of my work is done to get a scrap of my time, nor should they be.  I have given myself permission to carve out time to take care of myself, to say no and to not feel obligated.  I have learned that the phrase "it's not life or death" really means just that, because I now have a context to compare.

When the doctor gives you the "C" diagnosis, you really, genuinely believe in that moment that you are going to die, that your children will be motherless, that you will miss everything from that point on.  To then find out you are probably going to be ok is really to have your life yanked from you, re-molded and given back in a new form.  That new form is often given in a perspective that few get to truly experience.

It is a small club with a very shitty inititation ceremony, but I'm so glad to have it's membership.  

Time marches on.. and stomps on my head.

Well, it is happening.  I don't know if I thought I would get off easy, that I would be lucky.  It's strange because through all of this I've always felt incredibly blessed and lucky in my life and I continue to feel that way.  I caught the cancer early, it was a stage 1, it was ER/PR + and HR- (the best type of breast cancer to get, you know...) and the tumour was mucinous, which tend not to spread, and the lymph nodes were clear.  So I thought I had the proverbial cancer horseshoe up my ass.

I thought, maybe I wouldn't lose my hair, even though I said out loud "I will definititely lose my hair" to anyone who suggested I may not.  I guess deep down inside, maybe I thought I would be lucky.  Anyway, as I was blow-drying my hair yesterday (day 13.. LUCKY!) after chemo round #1, and I noticed long strands coming out all over my hands.  I tentatively pulled at a few strands, and sure enough.. out they came.

Even though I said, it's only hair, it will grow back, I'll have a nice wig, it was always an abstract idea that has quickly become concrete.

I feel sad and this sucks and it makes it real in way that wasn't before.

My daughter just silently walked over to me and threw her arms around my waist,  which was the exact right thing to do.  She didn't try to make me feel better or "bright side" it away.

I got in the shower and I didn't know whether to scrub it all out to get it over with or to baby it to try to stave off the inevitable a little longer.   I guess the middle path is always the right one, so I'll baby it until my scheduled hair appointment in a week, at which time I will cut it off short.  That way if it goes patchy or wonky up there, I can just plop the wig (whose name is Lindsay.. says the wig maker) on top until I buzz it.  That's the plan.

I just have to let this happen as it will, it's going to anyway.  I guess I'll take a pass on this one and save the luck for the important stuff, like living till 100 after I beat this thing.

A New Show Begins...

I just checked this old blog that I used to write, to help me cope with the tramatic experience of raising twin boys who were a little more "active" and "intense" than I had prepared for.  Suffice to say that raising children did not meet with my expectations of my earlier research: namely, childhood reruns of the Cosby Show.  

Well, we all know where putting our faith in the values held by Bill Cosby has gotten us, so I digress...

I noticed that when the boys began to get a bit easier, I found it more difficult to write, so I stopped.  It has never gotten easy, but after the age of 3 or 4 I either found some good drugs or the boys stopped being quite so impossible.  Well now I find myself in need of a space to write to chronicle a new experience, for myself, so I don't forget the fight I will win or the lessons I will learn along the way.  

I was diagnosed with breast cancer in April 2017.  This came as quite a shock, because I neither had the lifestyle factors (excessive drinking, smoking, obesity etc) or the family history to explain it.  I always thought cancer was something I was immune to, having more of a heart disease type family.  I had a firm sense of control over my life, I did all the right things, and I still got fucking cancer.  

Ugh.

The good news, however is that it was a good type of cancer to get.  That was my doctor's first consolation after she sent me reeling in her office with the diagnosis.  I clung to that word like a life raft for the first 10 seconds.  She said it was a mucinous ductal carcinoma.  At first she said the mucinous part worried her because it was a rare type of cancer.  As soon as I heard "rare" I heard "dead", because there are no large movements to fund research for rare diseases.  Then she told me in was a subtype of ductal cartinoma, which was the most treatable type.  She gave me a bunch of information and I left in a daze, texting BF, Cyn to "come to my house now".  She left her work and came immediately.  I called DH Chris at work (he teaches at a high school) and he came right home.  

I couldn't read anything or do anything.  Chris and Cynthia read stuff for me and gave me the reassuring pieces where they found them.  Apparently mucinous subtype has the best prognosis and is the least likely to spread, which was welcome hope.  Then Chris went on to become more of and expert in horemone receptor status, genetic phenotypes of tumours, stages and grades (without burdoning me with this of course).

I am four months in, and I had to start at the beginning to write about now... but I'll have to save now for later.

Well the upside is, cancer is a crappy hand to be dealt, but it sure cures writers block.